I am so sorry to post again so soon. I know I'm a windbag and all. However, when something comes up, I've just gotta pass it along.
So I've learned that S. 718, the creatively titled "Reducing Regulatory Burdens Act of 2011," is up for a vote in the Senate. The House version passed back in March.
The Big Umbrella is a forum for brainstorming how we parents of sick kids can unite our interests - and therefore our numbers - in order to become a force for reckoning. We've all spent our time and effort advocating, raising awareness, and raising money for whatever ails our particular loved ones; here, I hope to determine what our common cause is and go from there.
Tuesday, May 24, 2011
Monday, May 23, 2011
A Brief Note on Simple Logic and Taking Responsibility . . .
I have a couple of seemingly unrelated concepts to share with you. For most of you, the relationship will become obvious as soon as I reveal them. But many people have not put the two together, evidencing an almost pathological aversion to simple logic. Unless they just haven't thought of it before. (Our logical capabilities may have atrophied in the spoon-fed information age.) So just for the fun of it, let's assume that the latter is the case; here comes the sharing.
(Yes, I know. I have a weird sense of fun.)
(Yes, I know. I have a weird sense of fun.)
Monday, May 16, 2011
Stress, Values, and Saving the World
There isn't much harder stuff in life than dealing with a child's illness, whether it's a chronic and unrelenting uphill battle or an impending death. We all have these battle scars, we're all a little PTSD - post-traumatic stress disordered - and it's so very hard sometimes to match strides with the rest of the world. Because it becomes your world.
I went to some silly stress reduction class a couple of weeks back and there was the usual discussion of the most stressful life events. Several common stressful life events were assigned number values.
(Apparently none of us was polled.)
According to the stress experts, the most stressful event one can endure is the death of a spouse. Okay, I can go with that one. From there, though, it sort of fell apart for me. Just by way of example, divorce scored a 73, while the death of a close family member besides the spouse scored a 63. Not sure whether that's supposed to include the death of one's child, but nothing else on the list fit. The other item that might apply to having a sick child - "change in health of family member (not self)" - scored 44, while pregnancy scored a 40 and "sex problems" 39.
Hmmm. No wonder we feel so isolated.
I went to some silly stress reduction class a couple of weeks back and there was the usual discussion of the most stressful life events. Several common stressful life events were assigned number values.
(Apparently none of us was polled.)
According to the stress experts, the most stressful event one can endure is the death of a spouse. Okay, I can go with that one. From there, though, it sort of fell apart for me. Just by way of example, divorce scored a 73, while the death of a close family member besides the spouse scored a 63. Not sure whether that's supposed to include the death of one's child, but nothing else on the list fit. The other item that might apply to having a sick child - "change in health of family member (not self)" - scored 44, while pregnancy scored a 40 and "sex problems" 39.
Hmmm. No wonder we feel so isolated.
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